Yesterday began like most days. I awoke in agony, triggering a mini bout of depression, wondering when I would get the next blessed hospital appointment that I was waiting for. The latest bulletin was ‘sometime in December/January’.

This seems like an awful long time to wait, but then I have been in pain since before March of this year, when I lost the use of my legs. I am much stronger now, but there is a nagging suspicion that I might be starting to go backward again, despite sticking religiously to the exercise routine. 

What was about to happen that day was to prove just how fragile my condition is. Despite being able to stagger about and do things, I am not confident. Every time I move, I expect to be saying hello to the carpet again. Stairs still terrify me, even though I can now haul myself up them to use the bathroom. We have handrails up both sides, and I make full use of them, something I was about to become very grateful for.

Mid-morning, the call of nature became too strong to ignore, so I staggered to the bottom of the stairs, adjusted my posture and mind to the ordeal, and began to climb. This first time was non-eventful; I managed to complete the mission and make it back down without incident. Half an hour later, I knew I had to go back up the stairs again. Only this time, I had barely reached the top of the stairs before my right leg buckled, and I knew I would fall. Luckily, I was still holding the handrail and somehow managed to pull myself back upright.

I sat on the loo for an age, trying to summon up the courage to stand up and walk to the stairs. 

My stomach was churning, and I felt sick. My legs were shaking and I wanted to scream the house down. The thought of what would have happened if my grip had loosened and I had fallen down the entire flight of stairs kept replaying in my mind.

When I managed to summon up a scrap of courage and made it back to the safety of my office, I collapsed on the couch and howled.

The disastrous day didn’t end there, though. Once the family found out, I was subjected to endless lectures about my not being as clever as I thought I was, quickly followed by all the times I had gone against their instructions and gone ahead and tried to do something. Finishing with the usual ‘not being considerate about their fears and worries’.

By this time, I was torn between cutting my wrists in the kitchen (to minimise the mess, of course) to staggering out into the road to play with the traffic…

It all seems to have blown over this morning. We are conversing, with no sign of malice or retribution. So I will try not to cause any more ripples today… 


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Comments

21 responses to “One of the worst days…”

  1. I’m sorry you are still waiting for medical help. It has to be frustrating.

    1. I am known for my patience, but I’m slowly running out, John…

      1. I can imagine.

  2. I have never had chronic pain but have heard it is hell on earth.

    I wish you well in your journey

    1. it is the closest I have come to hell on earth, but hopefully it won’t be for ever…

  3. I can sympathise. A bother you only having the one bathroom and it’s upstairs. I;m so glad we live in a bungalow. I couldn’t manage stairs now, it’s bad enough climbing a couple of steps to get on the prom if there isn’t a ramp. Just a thought…………. could you have a commode downstairs?

    1. I do have a commode, but try to limit the messy stuff!

      1. I can understand that.

  4. So sorry to hear about the level of pain – and sorry to be able to say I understand. Constant pain is draining – you never get a break.

    Take whatever extra temporary precautions/solutions you might need – so you don’t have to also worry about complications; you can stop using them when you don’t need them. The last thing you need is to add problems.

    Same here.

    1. Although I don’t have a proper date yet for the next treatment, I am counting the days, Alicia…


  5. This is a tough situation, Jaye. Pain plus family stress is a bad combination. I hope all of you can work out a solution. 💚

    1. Most days are okay, Audrey, we just get a bit drained sometimes. I really hate being the cause of most of the stress…

  6. I hope you are heeding the sage advice of your family. Get a temporary portable loo chair for when you are downstairs- it will take the pressure off and allow you more quality time to heal whist salving the friends and families fears- but I have no suggestions about how you dump it without climbing the stairs- soooo maybe I am not being as helpful as i originally thought I was….

    1. I have to rely on my sister for jobs like that, but she is old and frail now, so not ideal… hopefully they can fix me soon…

  7. I’m sorry to read this post. I’m not understand the reaction of your family. What are the suggestions to resolve the bathroom issue if you don’t climb the stairs.

    1. I have commode, Robbie… but there are times when I would prefer to go upstairs… so I must learn how to do it safely…

  8. So sorry to hear about the latest fall. Sometime we just have to listen to what loved ones say. Not necessarily for their sakes but for ones own wellbeing and safety. Its hard; especially, when one has always tried to remain independent and not rely on others. Having said all that – remain positive and keep smiling My Friend.

    1. I am trying my best, Goff… even if it does annoy everyone…

      1. Stay Positive My Friend. ☕️😎

        1. Doing my best, Goff… 💖

          1. Good to hear. Keep Smiling. Happy Tuesday My Friend.☕️😍

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