Where I am right about now…

I started 2025 as the person I thought I knew, warts and all, familiar, but someone I thought I could trust.

Life wasn’t easy, but it seemed doable.

Then, all of a sudden, it wasn’t doable any more.

Thinking back to the beginning of my troubles, when my legs stopped trying to move, I realise that it has been as much a journey for my body as it has for my mind. Sometimes, my mind gets the short end of the stick.

Every time I religiously exercised to try to restore some strength, my mind took a different path. Mrs Optimistic rapidly changed into Mrs Not on your life, and as the days slowly passed, my mind gradually turned in on itself, ruining every day.

I was battling on two fronts, one that everyone could see, and one that remained a secret. This secret world was one I hadn’t visited before, and it taught me so much about all the things I usually ignored. Being semi-helpless wasn’t pleasant, and being at the mercy of other people’s tolerance/generosity was, in a way, far worse than the weakness in my legs.

Unintentionally, I’m sure, I was made to feel stupid, as if the constant pain had robbed me of all sensible thought and feeling. I wanted to tell them they had it backwards. I could sense their reluctance, their annoyance, and those horrible times when their true feelings were spoken aloud.

Thing is, I didn’t like myself most of the time either…

Then, something began to change. 

From a state of silent chaos, it turned into a different kind of silence. A silence that feels right. From feeling everything too darn much, I have become a different person. I have stopped worrying, wondering and all the speculation. This new silence is peaceful, a place where I feel real for probably longer than I care to consider. 

 If this change is to help me through the changes, I welcome it, for I no longer trust my own judgement. For the first time in a long while, the new year looks promising…

Back to the hospital tomorrow, my mind on hold, but all my fingers are crossed!


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Responses

  1. Alicia Butcher Ehrhardt Avatar

    After 36 years of ME/CFS, constant and increasing pain and ‘discomfort’, I do the best I can, ignore as much as possible, keep looking for tweaks to eating and sleeping and pain, and WORK on finishing my magnum opus, Pride’s Children, which has given meaning to all this, that I share.

    I spend energy I don’t really have trying to ignore what I can, so that I get something accomplished.

    Balancing act. I don’t want to miss whatever good bits there may still be spending too much time whining about the omnipresent bad ones. Every day, after I give up trying to get more sleep, I put myself back together, grit my teeth, and if possible put myself in my writing space, with the internet blocked, other programs hidden on my screens, and my ‘process’ lists of prompts guiding me to what tiny piece of Pride’s Children: LIMBO I’m working on at the time.

    Liked by 1 person

    1. Jaye Marie & Anita Dawes Avatar

      This sounds much like me, Alicia… and most of the time it does seem to work. My family don’t really understand though, they think I should welcome the opportunity to simply rest…

      Like

      1. Alicia Butcher Ehrhardt Avatar

        What is YOUR magnum opus?

        Families can think they love you like you need, and we protect them from the reality, and they’re way off. Just from mine. I can’t imagine what happens when they are NOT loving families.

        Liked by 1 person

        1. Jaye Marie & Anita Dawes Avatar

          I can imagine, Alicia, as I have experienced such a family. Really lucky that my adopted family is so wonderful!

          Liked by 1 person

  2. John W. Howell Avatar

    Fingers crossed here as well.

    Liked by 1 person

  3. pensitivity101 Avatar

    Will be thinking of you tomorrow Jaye. Keep positive.

    Liked by 2 people

    1. Jaye Marie & Anita Dawes Avatar

      I am very positive this morning, Di… so grateful that today has arrived!

      Liked by 1 person

      1. pensitivity101 Avatar

        Hope the day goes well.

        Like

  4. OIKOS™- Art, Books & more Avatar

    This sounds like really good news, Jaye! Randomly i have to think on the Beatle`s song “Let it be”. You found the right direction. Go forward, and don`t look back. Best wishes, Michael

    Liked by 1 person

    1. Jaye Marie & Anita Dawes Avatar

      Thank you so much, Michael. Your good wishes are wonderful!

      Liked by 1 person

  5. Annette Rochelle Aben Avatar

    Angels and I surround you with wings of loving support!

    Liked by 2 people

    1. Jaye Marie & Anita Dawes Avatar

      Today, I can feel their presence, Annette… 💖🕊️

      Liked by 2 people

  6. Darlene Avatar

    I think acceptance is settling in which is necessary for peace of mind. Like you, I would fight the changes at first too. It’s human nature.

    Liked by 2 people

    1. Jaye Marie & Anita Dawes Avatar

      I think this new found peace arrived to save my sanity, as I was a mess, but not now… Hopefully, nothing will happen today to spoil it…

      Liked by 1 person

  7. robbiesinspiration Avatar

    I am sorry that you have felt so unsupported. I think that is very sad. When my aunt was very ill for four months last year, we supported her through every hospitalization and doctor appointment.

    Liked by 1 person

    1. Jaye Marie & Anita Dawes Avatar

      As it should be, Robbie. I guess I didn’t know my family very well…

      Liked by 1 person

  8. Violet Lentz Avatar

    I am so glad to hear you are warming up to a new normal. My fingers are crossed for you as well!

    Liked by 1 person

    1. Jaye Marie & Anita Dawes Avatar

      Thank you so much, Violet…

      Liked by 1 person

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